Committed to Science

Elsa Science has contributed to multiple research projects over the years and we continue to engage in a wide array of research initiatives as part of our commitment to science and advancing the rheumatic healthcare system. We are dedicated to democratize science, develop safe and meaningful products and generate convincing evidence to fuel value-based healthcare in rheumatology.

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Research Projects

Projects

MAY 2023

SPIDeRR – Stratification of Patients using advanced Integrative modeling of Data Routinely acquired for diagnosing Rheumatic complaints

SPIDeRR aims to disentangle the real-life complexity of early diagnosis of rheumatic diseases by considering the complete web of factors influencing patients’ symptoms. SPIDeRR’s approach will go well beyond the state-of-the-art in the following ways:

  • By identifying different disease groups, requiring different therapies, amongst patients with similar symptoms in contrast to the traditional approach aiming to only capture one disease early.
  • By integrating all relevant data dimensions from every healthcare level (primary and secondary care and patients seeking advice online).
  • By translating and applying machine learning techniques from the “omics” field to clinical patient data, which will result in new pipelines for translational data science
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NOV 2022 – ONGOING

IRMA – Investigating a Digital Rheumatic Care Management system to Manage Rheumatoid Arthritis

An explorative observational study with the purpose of investigating the value of “Rheumatic Care” management system for patients with Rheumatoid Arthritis by investigating disease activity, quality of life, patient satisfaction as well as healthcare utilization.

JUNE 2022

DigiPrevent – Personalized prevention and early treatment of Rheumatoid Arthritis

A European project aiming to change care of rheumatic diseases, from current long-term expensive treatment towards prevention, to earlier diagnosis and early curative care.

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JULY 2021

RealHope – Real-World Handling of Protein Drugs Exploration, Evaluation and Education

RealHOPE is a European research project that aims to measure and simulate real-life events during the handling of sensitive protein drugs. The goal is to support a safe and efficient use of these drugs for patients through practical recommendations and education, to ensure careful handling of drugs throughout the whole chain – healthcare, pharmacy staff and patients.

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MARCH 2020

DIVE – Design and clinical study of a prognosis module for disease activity follow up in Rheumatoid Arthritis-patients

The purpose of this project is to 1) develop a prognosis feature based on clinical data and integrate into a self-care app for people with Rheumatoid Arthritis and 2) evaluate the effect of the usage of the self-care app in a prospective randomized clinical trial. Recruitment ongoing.

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NOV 2019

NORA – Nordic Rheumatoid Arthritis project – Personalized Medicine

A project focused on personalized medicine in Rheumatoid Arthritis, aiming to improve the prediction of therapy outcome by combining genomics, biomarkers, clinical- and patient-derived data from the Nordic countries. Research study ongoing.

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Research Publications

Publications

DECEMBER 2023

Experiences of individuals with rheumatoid arthritis interacting with health care and the use of a digital self-care application: a qualitative interview study

Jennifer Viberg Johansson, Hanna Blyckert, Karin Schölin Bywall; BMJ Open, 2023

📝 Peer Reviewed publication

Aim: to explore the experiences of individuals with RA interacting with healthcare. The study also looked at how a self-care application, an educational programme called the ‘healthcare encounter’, improved patient–doctor communication.

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APRIL 2023

A population-based user-perceived experience of Rheumatic? – a novel digital symptom-checker in rheumatology

K Lundberg, L Qin, C Aulin et al.; RMD Open, 2023

📝 Peer Reviewed publication

Aim: Examine usability and acceptance of the digital symptom-checker “Rheumatic?” in a real-world setting.

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JUNE 2022

Making space for patients' preferences in precision medicine: a qualitative study exploring perspectives of patients with rheumatoid arthritis

K Schölin Bywall, J Viberg Johansson, I Erlandsson et al.; BMJOpen, 2022

📝 Peer Reviewed publication

Aim: Explore patient perspectives on patient-centredness in precision medicine for Rheumatoid Arthritis treatment.

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APRIL 2022

Rheumatic?—A Digital Diagnostic Decision Support Tool for Individuals Suspecting Rheumatic Diseases: A Multicenter Pilot Validation Study

Rachel Knevel, Johannes Knitza, Aase Hensvold, Alexandra Circiumaru, Tor Bruce, Sebastian Evans, Tjardo Maarseveen, Marc Maurits, Liesbeth Beaart-van de Voorde, David Simon, Arnd Kleyer, Martina Johannesson, Georg Schett, Tom Huizinga, Sofia Svanteson, Alexandra Lindfors, Lars Klareskog, Anca Catrina; Front. Med., 2022

📝 Peer Reviewed publication

Aim: Test “Rheumatic?” in individuals suspecting a rheumatic disease to analyze its discriminatory ability between patients with and without immune-mediated rheumatic diseases.

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MARCH 2022

Functional capacity vs side effects: treatment attributes to consider when individualizing treatment for patients with Rheumatoid Arthritis

K Schölin Bywall, B Appel Espensen, M Lason et al.; Clin Rheumatol, 2022

📝 Peer Reviewed publication

Aim: Identify patient-relevant treatment attributes to consider when individualizing treatment for patients with Rheumatoid Arthritis

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MARCH 28, 2023

Innovation in SMEs

Develop a prognosisfeature based on clinical data and integrate into a self-care app for people with RA. Evaluate the effect of the usage of the self-care app in a clinical study.

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MARCH 28, 2023

DigiPrevent

A European project aiming to change care of rheumatic diseases, from current long-term expensive treatment towards prevention, earlier diagnosis and early curative care.

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MARCH 28, 2023

SPIDeRR

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MARCH 28, 2023

RDC

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MARCH 28, 2023

RealHope

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Our Research Partners

Logo University of Colorado Anschutz Medical CampusLogo Leids Universitair Medisch CentrumLogo Diakonhjemmet SykehusLogo ReumaNederlandLogo Karolinska InstitutetLogo Uppsala UniversitetLogo Linköping UniversityLogo Medtech4HealthLogo NordforskLogo ReumatikerförbundetLogo Region HovedstadenLogo Unga Reumatiker